37. that's it.
Their story
Brooke Eby was an American ALS advocate and social media personality whose candor and humor helped millions understand amyotrophic lateral sclerosis. Born on December 22, 1988, in Potomac, Maryland, she grew up in a close suburban family and later became one of the most visible young voices living publicly with…
Brooke Eby was an American ALS advocate and social media personality whose candor and humor helped millions understand amyotrophic lateral sclerosis. Born on December 22, 1988, in Potomac, Maryland, she grew up in a close suburban family and later became one of the most visible young voices living publicly with a terminal motor neuron disease.
As a teenager she appeared in television commercials and had a minor role in the 2003 film Holes. She graduated from Lehigh University in 2010 with a degree in business systems information. Her father, Clifford Eby (class of 1973), and her brother, Christopher Eby (class of 2005), are also Lehigh alumni. After college she worked in business development in New York and San Francisco. In 2016 she joined Salesforce, eventually serving as an ISV principal business development manager.
In 2018, while rushing from Salesforce's New York office to a company event, Eby struggled to keep pace with colleagues. Tightness in her calf and foot drop followed. Doctors ran MRIs, scans, spinal taps, and blood tests over four years. She was officially diagnosed with ALS in March 2022 at age 33. Most people live only two to five years after diagnosis. There is no cure. She later moved from cane to walker to wheelchair in under a year and eventually returned to her parents' home in Potomac for support.
Two months after the diagnosis, she attended the wedding of close Lehigh friend Jessica Lubitz as a bridesmaid, using a walker. After an anxious start, she turned the evening around: guests limboed under the walker and took walker rides on the dance floor. That night convinced her that laughter could make ALS approachable. She launched social accounts under the handle limpbroozkit, documenting medications, adaptive living, and dark humor. By the mid-2020s she had hundreds of thousands of followers across TikTok, Instagram, and other platforms.
At Salesforce she disclosed her diagnosis on LinkedIn and found strong support, including from CEO Marc Benioff. Colleagues helped build ALSforce, an internal ambassador network that raised hundreds of thousands of dollars for ALS causes. Company benefits helped her access braces and medications quickly. Outside work she founded ALStogether, a Slack-based peer community for people living with ALS and caregivers. In 2026 the ALS Network began integrating ALStogether to expand its reach. She also collaborated with Silverts on an adaptive clothing line and urged attention to promising treatments under FDA review.
Eby threw a ceremonial first pitch for the Baltimore Orioles on ALS Awareness Night in June 2023. She appeared on NBC's Today show, in The New York Times, The New Yorker, People, Inside Edition, and on podcasts. In 2026 the ALS Network honored her with the Dean and Kathleen Rasmussen Advocate of the Year Award. Learning of the honor, she said she had not chosen ALS but had chosen to get loud and remain irreverent about it.
She died on October 1, 2026, at age 37. The ALS Network remembered her as an advocate, storyteller, and community builder whose honesty changed how countless people understood the disease. Salesforce's Marc Benioff publicly mourned her as a warrior whose positive attitude could melt a glacier. Her parents, Cliff and Ginny Eby, her siblings Chris and Sarah, and the ALStogether community survive her in grief and in the work she started. Her voice still lives in the platforms she built and in every person she helped feel less alone.
Biography adapted from Wikipedia; ALS Network memorial; Lehigh University News; Salesforce; Ability Magazine; New York Times.
In their own words
“I didn't choose ALS, but I did choose to get loud, and be irreverent about it, so don't worry, I'm not getting quiet anytime soon!”
Response on learning she would receive the ALS Network Advocate of the Year Award (2026)
“If my platform can help start conversations, then conversations drive awareness, which drives pressure and resources to find a cure.”
Interview with Salesforce about her advocacy goals
“I remember thinking, people are more comfortable if you make them laugh. I think I can make people understand what I'm going through while also still laughing.”
Lehigh University News interview (2023)
“This is the path I'm supposed to be on. We are all more resilient than we give ourselves credit for.”
Quoted in Lehigh University News
“ALS isn't rare. The lifetime risk is 1 in 300, so there are so many people whose lives have been touched by ALS.”
Salesforce career-story interview (em dash replaced in API copy)
“I feel like I was meant for this role. I've always used humor in any situation. I have a sales background. I feel like I'm meant to drive awareness for ALS.”
Salesforce interview on limpbroozkit advocacy
“I'm so grateful for this award because it tells me I'm helping in my own weird way.”
On the ALS Network Advocate of the Year honor
“Don't Google anything. There's no need.”
Advice to newly diagnosed people, Ability Magazine interview

yeah it hit me hard too