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Brooke Eby

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Brooke Eby

1988 – 2026 · aged 37 · ALS advocate; social media personality; Salesforce ISV principal business development manager; founder of ALStogether

“ALS advocate who used humor and honesty to make a terminal disease approachable for millions.”

Portrait: Parrishblue / Wikimedia Commons

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Brooke Eby was an American ALS advocate and social media personality whose candor and humor helped millions understand amyotrophic lateral sclerosis. Born on December 22, 1988, in Potomac, Maryland, she grew up in a close suburban family and later became one of the most visible young voices living publicly with…

Brooke Eby was an American ALS advocate and social media personality whose candor and humor helped millions understand amyotrophic lateral sclerosis. Born on December 22, 1988, in Potomac, Maryland, she grew up in a close suburban family and later became one of the most visible young voices living publicly with a terminal motor neuron disease.

As a teenager she appeared in television commercials and had a minor role in the 2003 film Holes. She graduated from Lehigh University in 2010 with a degree in business systems information. Her father, Clifford Eby (class of 1973), and her brother, Christopher Eby (class of 2005), are also Lehigh alumni. After college she worked in business development in New York and San Francisco. In 2016 she joined Salesforce, eventually serving as an ISV principal business development manager.

In 2018, while rushing from Salesforce's New York office to a company event, Eby struggled to keep pace with colleagues. Tightness in her calf and foot drop followed. Doctors ran MRIs, scans, spinal taps, and blood tests over four years. She was officially diagnosed with ALS in March 2022 at age 33. Most people live only two to five years after diagnosis. There is no cure. She later moved from cane to walker to wheelchair in under a year and eventually returned to her parents' home in Potomac for support.

Two months after the diagnosis, she attended the wedding of close Lehigh friend Jessica Lubitz as a bridesmaid, using a walker. After an anxious start, she turned the evening around: guests limboed under the walker and took walker rides on the dance floor. That night convinced her that laughter could make ALS approachable. She launched social accounts under the handle limpbroozkit, documenting medications, adaptive living, and dark humor. By the mid-2020s she had hundreds of thousands of followers across TikTok, Instagram, and other platforms.

At Salesforce she disclosed her diagnosis on LinkedIn and found strong support, including from CEO Marc Benioff. Colleagues helped build ALSforce, an internal ambassador network that raised hundreds of thousands of dollars for ALS causes. Company benefits helped her access braces and medications quickly. Outside work she founded ALStogether, a Slack-based peer community for people living with ALS and caregivers. In 2026 the ALS Network began integrating ALStogether to expand its reach. She also collaborated with Silverts on an adaptive clothing line and urged attention to promising treatments under FDA review.

Eby threw a ceremonial first pitch for the Baltimore Orioles on ALS Awareness Night in June 2023. She appeared on NBC's Today show, in The New York Times, The New Yorker, People, Inside Edition, and on podcasts. In 2026 the ALS Network honored her with the Dean and Kathleen Rasmussen Advocate of the Year Award. Learning of the honor, she said she had not chosen ALS but had chosen to get loud and remain irreverent about it.

She died on October 1, 2026, at age 37. The ALS Network remembered her as an advocate, storyteller, and community builder whose honesty changed how countless people understood the disease. Salesforce's Marc Benioff publicly mourned her as a warrior whose positive attitude could melt a glacier. Her parents, Cliff and Ginny Eby, her siblings Chris and Sarah, and the ALStogether community survive her in grief and in the work she started. Her voice still lives in the platforms she built and in every person she helped feel less alone.

Biography adapted from Wikipedia; ALS Network memorial; Lehigh University News; Salesforce; Ability Magazine; New York Times.

In their own words

“I didn't choose ALS, but I did choose to get loud, and be irreverent about it, so don't worry, I'm not getting quiet anytime soon!”

Response on learning she would receive the ALS Network Advocate of the Year Award (2026)

“If my platform can help start conversations, then conversations drive awareness, which drives pressure and resources to find a cure.”

Interview with Salesforce about her advocacy goals

Photos

2
Brooke Eby at an event (2019)
Sept 2019 · by People Forever

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Brooke Eby during a 2024 ALS research and advocacy discussion
Oct 2024 · by People Forever

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Videos

7
ALS Awareness Month Day 1: unleash the questions
2h ago

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VERYYYYY (Brooke Eby)
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My advanced directives with ALS using Five Wishes
2h ago

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sick with ALS (Brooke Eby)
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Tributes

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Memories, thanks and farewells from the people Brooke touched.

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37. that's it.

Patrick Mills4h ago

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yeah it hit me hard too

Candles

6

8 people are remembering Brooke here. Every candle here is someone saying they were glad Brooke lived. No account needed; it takes a moment and it stays here.

No account needed.
Min-ji Watanabe🇦🇺4h ago
Lourdes Navarro🇵🇭5h ago
thank you for making us laugh while teaching us
Salvador Romero🇺🇸11h ago
Danilo Villanueva🇺🇸13h ago
Sem Andersson🇺🇸23h ago
Fernanda Oliveira🇧🇷1d ago

Early life

Brooke Eby was born on December 22, 1988, in Potomac, Maryland, and grew up in a suburban home with her parents, Cliff and Ginny Eby, and her siblings. In early adolescence she appeared in television commercials and as a minor character in the 2003 film Holes. Those early brushes with cameras foreshadowed a later life spent explaining hard truths on…

Brooke Eby was born on December 22, 1988, in Potomac, Maryland, and grew up in a suburban home with her parents, Cliff and Ginny Eby, and her siblings. In early adolescence she appeared in television commercials and as a minor character in the 2003 film Holes. Those early brushes with cameras foreshadowed a later life spent explaining hard truths on camera with unusual ease.

Education

Eby graduated from Lehigh University in 2010 with a degree in business systems information. Lehigh was a family tradition: her father Clifford Eby graduated in 1973 and her brother Christopher in 2005. On campus she formed lasting friendships, including with Jessica Lubitz, whose wedding years later became a turning point in how Eby chose to talk about ALS in public.

Eby graduated from Lehigh University in 2010 with a degree in business systems information. Lehigh was a family tradition: her father Clifford Eby graduated in 1973 and her brother Christopher in 2005. On campus she formed lasting friendships, including with Jessica Lubitz, whose wedding years later became a turning point in how Eby chose to talk about ALS in public.

Career

After college Eby worked in business roles in New York and San Francisco. She joined Salesforce in 2016 and rose to ISV principal business development manager. Even after her 2022 ALS diagnosis she kept working, adapting her setup as mobility declined. Colleagues later helped form ALSforce, an internal Slack community of more than 700 members devoted to ALS awareness and…

After college Eby worked in business roles in New York and San Francisco. She joined Salesforce in 2016 and rose to ISV principal business development manager. Even after her 2022 ALS diagnosis she kept working, adapting her setup as mobility declined. Colleagues later helped form ALSforce, an internal Slack community of more than 700 members devoted to ALS awareness and fundraising. She credited Salesforce benefits with speeding access to braces and medications that insurers often delayed for other patients.

Advocacy and media

Under the handle limpbroozkit, Eby documented life with ALS on TikTok, Instagram, YouTube, and X. She used humor to answer questions about progression, adaptive gear, and daily frustrations, aiming to reduce the fear that keeps people silent about the disease. She founded ALStogether so newly diagnosed patients and caregivers could find peers in real time rather than sorting alone through…

Under the handle limpbroozkit, Eby documented life with ALS on TikTok, Instagram, YouTube, and X. She used humor to answer questions about progression, adaptive gear, and daily frustrations, aiming to reduce the fear that keeps people silent about the disease. She founded ALStogether so newly diagnosed patients and caregivers could find peers in real time rather than sorting alone through paper resource folders. She collaborated with Silverts on adaptive clothing, spoke at corporate and nonprofit events, and appeared on NBC's Today show and in major magazines. Lifetime risk of ALS is often cited around 1 in 300; she argued that louder public conversation could push resources toward a cure.

Personal life

Symptoms began in 2018 with calf tightness and foot drop. After four years of testing she received an ALS diagnosis in March 2022. She moved from cane to walker to wheelchair within about nine months to a year and later lived with her parents in Potomac for care support. She spoke warmly about texts from her young nieces and about…

Symptoms began in 2018 with calf tightness and foot drop. After four years of testing she received an ALS diagnosis in March 2022. She moved from cane to walker to wheelchair within about nine months to a year and later lived with her parents in Potomac for care support. She spoke warmly about texts from her young nieces and about dancing with a walker at a friend's wedding. She described work as protective: without it, she said, she would have more time to dwell on the disease.

Beliefs and views

Eby believed awareness drives pressure and resources. She wanted people to associate ALS with living patients, not only historical names. She preferred laughter to pity when disclosing her diagnosis, arguing that people are more comfortable if you make them laugh. She advised newly diagnosed people to seek age-matched peer support, accept mobility aids sooner rather than later, and avoid doom-scrolling…

Eby believed awareness drives pressure and resources. She wanted people to associate ALS with living patients, not only historical names. She preferred laughter to pity when disclosing her diagnosis, arguing that people are more comfortable if you make them laugh. She advised newly diagnosed people to seek age-matched peer support, accept mobility aids sooner rather than later, and avoid doom-scrolling medical searches. She also stressed that ALS looks different for everyone under one umbrella label.

Legacy and impact

Through social media, ALStogether, ALSforce fundraising, and public speaking, Eby helped translate a fast, frightening disease into language ordinary viewers could face. The ALS Network credited her with changing how people living with ALS find one another. After her death the network pledged to steward ALStogether while protecting what made the community special. Millions who never met her still learned…

Through social media, ALStogether, ALSforce fundraising, and public speaking, Eby helped translate a fast, frightening disease into language ordinary viewers could face. The ALS Network credited her with changing how people living with ALS find one another. After her death the network pledged to steward ALStogether while protecting what made the community special. Millions who never met her still learned what foot drop, voice banking, and adaptive dressing feel like because she showed them.

Awards and honours

In 2026 the ALS Network awarded Eby the Dean and Kathleen Rasmussen Advocate of the Year Award (also reported as Advocate of the Year). Accepting the recognition, she said she had not chosen ALS but had chosen to get loud and be irreverent about it, and that the award told her she was helping in her own weird way. Salesforce…

In 2026 the ALS Network awarded Eby the Dean and Kathleen Rasmussen Advocate of the Year Award (also reported as Advocate of the Year). Accepting the recognition, she said she had not chosen ALS but had chosen to get loud and be irreverent about it, and that the award told her she was helping in her own weird way. Salesforce colleagues and executives repeatedly celebrated her as a trailblazer inside the company.

Death

Brooke Eby died on October 1, 2026, at age 37, after living with ALS following her 2022 diagnosis. The ALS Network published a memorial the same day, praising her honesty, humor, and community building. Salesforce CEO Marc Benioff confirmed her death and called her an amazing warrior whose positive attitude could melt a glacier. She is remembered by her family,…

Brooke Eby died on October 1, 2026, at age 37, after living with ALS following her 2022 diagnosis. The ALS Network published a memorial the same day, praising her honesty, humor, and community building. Salesforce CEO Marc Benioff confirmed her death and called her an amazing warrior whose positive attitude could melt a glacier. She is remembered by her family, friends, Salesforce colleagues, and the ALStogether community.

Questions people ask about Brooke

Who was Brooke Eby?
Brooke Eby (1988-2026) was an American ALS advocate and social media personality, a Salesforce business development manager, and the founder of the ALStogether peer community.
When did Brooke Eby die?
She died on October 1, 2026, at age 37.
What was Brooke Eby's cause of death?
She died after living with amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. Detailed clinical circumstances beyond ALS were not made public in major memorial statements.
When was Brooke Eby diagnosed with ALS?
She was officially diagnosed in March 2022 at age 33, after symptoms began around 2018.
Where was Brooke Eby born?
Potomac, Maryland, United States.
What was Brooke Eby's TikTok and Instagram handle?
She posted as @limpbroozkit on TikTok, Instagram, YouTube, and X.
What is ALStogether?
ALStogether is a Slack-based support community Eby founded for people living with ALS and caregivers to share resources and peer support in real time. In 2026 it began integrating with the ALS Network.
Where did Brooke Eby go to college?
Lehigh University, class of 2010, with a degree in business systems information.
Did Brooke Eby work at Salesforce?
Yes. She joined in 2016 and worked as an ISV principal business development manager while living with ALS.
Did Brooke Eby appear on the Today show?
Yes. She appeared in a Today segment about facing ALS with heart and humor.
Who are Brooke Eby's parents?
Cliff (Clifford) and Ginny Eby. Her father and brother are also Lehigh alumni.
Did Brooke Eby throw a first pitch?
Yes. On ALS Awareness Night in June 2023 she threw a ceremonial first pitch at a Baltimore Orioles game.
What awards did Brooke Eby receive?
In 2026 the ALS Network honored her with the Dean and Kathleen Rasmussen Advocate of the Year Award.
Was Brooke Eby in the movie Holes?
Yes. As a young performer she appeared as a minor character in the 2003 film Holes and in TV commercials.
How did Brooke Eby use humor with ALS?
After finding that laughter at a friend's wedding made disclosure easier, she built limpbroozkit content that mixed practical education with irreverent jokes so audiences could learn without freezing in fear.
How old was Brooke Eby when she died?
37.

Written by People Forever from Wikipedia (CC BY-SA 4.0) and the reporting cited. Updated . Spotted a mistake? Tell us.

From social media

6

Posts by Brooke, and posts about them, kept here so they are not lost.

@limpbroozkit

Replying to @quayle83 I hope you weren't looking for a sentimental answer

♬ original sound - konetix
TikTok · added by People Forever

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Instagram
https://www.instagram.com/limpbroozkit/reel/C2oEeVjtMfU/
https://www.instagram.com/limpbroozkit/reel/C2oEeVjtMfU/
Instagram · added by People Forever

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Instagram
https://www.instagram.com/limpbroozkit/reel/C2qmJMbtW8Y/
https://www.instagram.com/limpbroozkit/reel/C2qmJMbtW8Y/
Instagram · added by People Forever

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Instagram
https://www.instagram.com/limpbroozkit/reel/Ctc1v_ZvXVi/
https://www.instagram.com/limpbroozkit/reel/Ctc1v_ZvXVi/
Instagram · added by People Forever

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X · added by People Forever

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X · added by People Forever

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Timeline

  1. 22 December 1988
    Born in Potomac, Maryland, United States
  2. 22 December 1988
    Born in Potomac, Maryland

    Brooke Eby is born to Cliff and Ginny Eby.

  3. 1 January 2003
    Appears in Holes

    As a young performer she has a minor role in the film Holes and appears in commercials.

  4. 1 January 2010
    Graduates from Lehigh University

    Earns a degree in business systems information.

  5. 1 January 2016
    Joins Salesforce

    Begins a business development career that later includes ISV principal roles.

  6. 1 January 2018
    First ALS symptoms

    Notices calf tightness and difficulty walking while rushing to a work event in New York.

  7. 1 January 2018
    Foot drop identified

    Sister Sarah, a doctor, helps recognize left foot drop during a heel-and-toe walk test.

  8. 1 January 2022
    ALSforce forms

    Internal Salesforce ambassador network grows around ALS awareness and fundraising.

  9. 1 January 2022
    Friend's wedding turning point

    As a bridesmaid using a walker, she finds humor helps others engage without only crying.

  10. 1 January 2022
    Launches limpbroozkit

    Begins documenting ALS on TikTok and other platforms with humor and practical detail.

  11. 1 January 2022
    LinkedIn disclosure

    Shares her diagnosis with her professional network and receives strong Salesforce support.

  12. 1 March 2022
    ALS diagnosis

    Officially diagnosed with ALS at age 33 after about four years of testing.

  13. 1 January 2023
    Founding ALStogether

    Creates a Slack peer community for people with ALS and caregivers.

  14. 18 May 2023
    Today show appearance

    Featured in a national segment on facing ALS with heart and humor.

  15. 1 June 2023
    Orioles first pitch

    Throws a ceremonial first pitch on ALS Awareness Night in Baltimore.

  16. 1 January 2024
    Salesforce profile and fundraising

    Company storytelling highlights her journey; ALSforce and Levity Project efforts raise large sums for ALS research.

  17. 1 January 2025
    New York Times feature

    Profiled for using humor about living with ALS on TikTok and Instagram.

  18. 1 January 2025
    Silverts collaboration

    Partners on Brooke Eby x Silverts adaptive clothing.

  19. 1 March 2026
    Advocate of the Year recognition begins

    ALS Network honors her advocacy leadership (Dean and Kathleen Rasmussen Advocate of the Year).

  20. 1 June 2026
    ALStogether integration announced

    ALS Network and Eby begin integrating ALStogether into the organization for long-term stewardship.

  21. 1 October 2026
    Death

    Dies at age 37. ALS Network and Salesforce leaders publish tributes.

  22. 1 October 2026
    Died in United States
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